Author: Circe Stumbo

The Immortal Life of Henrietta Lacks: A Story Worth Telling and a Model for Storytelling

The Immortal Life of Henrietta Lacks: A Story Worth Telling and a Model for Storytelling

Reading Time: 3 minutes

I just read the New York Times best-seller “The Immortal Life of Henrietta Lacks.” Henrietta Lacks was a black woman treated for cervical cancer at John Hopkins in the early 1950s. It was during this treatment that her cancer cells were taken without her knowledge, grown in a laboratory, and sold to scientists around the globe. Henrietta died in 1951 at the age of 31, but her cells, known to scientists as HeLa, live on in laboratories and medical schools around the globe. HeLa was vital to the development of the polio vaccine, cloning, gene mapping, in vitro fertilization, and much more. In 1996, Roland H. Pattillo, M.D., a professor in the Department of Obstetrics and Gynecology of Morehouse School of Medicine, began the annual HeLa Women’s Health Conference, and the BBC filmed  part of its documentary “The Way of All Flesh” at the event. Yet, before this book, her family was virtually unknown to the general public and could not afford health care that would give them access to the medical advances their own mother made possible.

While the book could have easily been couched as a “historical” account, white, female author Rebecca Skloot carefully demonstrated the very real, very contemporary significance of the story. As noted on the author’s website: “The Immortal Life of Henrietta Lacks tells a riveting story of the collision between ethics, race, and medicine; of scientific discovery and faith healing; and of a daughter consumed with questions about the mother she never knew. It’s a story inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we’re made of.” In fact, the last chapter of the book describes the yet unsettled legal context in which these debates continue.  I hope we can expect the same treatment by the Oprah Winfrey/Alan Ball HBO movie being made.

I was especially impressed with the author’s continuing commitment to Henrietta Lacks’ family and to others like them. The author founded the Henrietta Lacks Foundation. According to the foundation website: “The Henrietta Lacks Foundation strives to provide financial assistance to needy individuals who have made important contributions to scientific research without personally benefiting from those contributions, particularly those used in research without their knowledge or consent. The Foundation gives those who have benefited from those contributions — including scientists, universities, corporations, and the general public — a way to show their appreciation to such research subjects and their families. The Foundation has already awarded 19 grants, including grants covering tuition and book expenses, health care expenses and emergency needs of multiple members of her immediate family. The Foundation’s goal is to continue to help the Lacks family as well as others with similar needs who may qualify, such as descendants of research subjects used in the famous Tuskegee Syphilis Studies, those injected with sexually transmitted diseases without their knowledge by the US Government, and others. To be eligible for a grant, an applicant must prove financial need and have made, or be the descendant of someone who has made, a significant contribution to scientific research as a research subject, including those who have unwillingly or unknowingly been used in research or contributed biological materials for research.”

This book will change how you think about race, medicine, science, and your own control of your body.  Not only it is a must read, but I believe it is an example of responsible and ethical storytelling with and for the people whose stories are being told.

Back to School

Back to School

Reading Time: < 1 minute

Teachers everywhere are preparing lessons to teach our children. In the minute it takes you to read this, teachers all over the world are investing their time and often investing their own money for your child’s literacy, prosperity and future. Thanks to teachers everywhere for all you do. We appreciate and respect you.

OUR BACK-TO-SCHOOL BUNCH

Bonnie: Doesn’t matter how old you are in my house, you can’t escape the First-Day-of-School photo or the mom and dad send off full of pride and hopes for the future. Pictured top left: BMac, a junior at Tate High School, Iowa City, IA.

Deanna: And they’re off…A picture of the boys on their first day of school—2nd and 5th grade already! Pictured top center.

Valerie: First there were three, now there is one. JMAN on his first solo day at elementary school since big brother is off to jr. high. and bigger brother is off to high school. Pictured top right.

Circe: My baby (ahem, son) off to high school, my daughter off to junior high, our new family member from France who was staying with us off to first day of school too! Pictured bottom left.

Mandi: My oldest off to first grade – and this year he made me stop one block from the school to kiss him good bye. Pictured bottom right.

Reform strategies give opportunities and voice to students

Reform strategies give opportunities and voice to students

Reading Time: < 1 minute

The National High School Center this summer is modeling two strategies that are central to education reform efforts: first by providing community-based education opportunities for local youth and second by giving voice to that student experience.

NHSC’s parent organization American Institutes for Research is sponsoring a student employee through Washington DC’s Mayor’s Youth Leadership Institute (MYLI), a community program that provides learning and growth opportunities to DC youth. Daisha Hale, a 2011 graduate from Benjamin Banneker Academic Senior High School in Washington, DC, is working at AIR and last week published a post for the National High School Center’s High School Matters blog describing her experience with the MYLI.

West Wind is serving on the High School Matters blog editorial team and we are looking for high school students to contribute to the blog. West Wind also has been including local students and youth in our own programming, as well, such as our employment of students with disabilities through the local schools’ Transitions Service Center, serving as a mentor and Bronze Sponsor for Iowa City’s Fast Trac program, showcasing artwork by Tate High School students in our office gallery, and by inviting student contributors to our blog.

Can your organization provide community-based programs for students? Do you have structures—publications, meetings, etc.—where student voice should be present?

Portland School Board Adopts Racial Equity Policy

Portland School Board Adopts Racial Equity Policy

Reading Time: 2 minutes

Board of Education

On June 13, the Portland (Oregon) School Board voted unanimously to adopt a Racial Equity Policy for the district.  The Racial Equity Policy was supported by community and school leaders and, according to a district announcement, was met with applause during its first reading before the board on May 9.

The Racial Equity Policy acknowledges that Portland’s data is not unique (data from districts across the nation reveal similar racial disparities) and that complex societal and historical factors contribute to the inequities its students face.  However, the Racial Equity Policy states:

Nonetheless, rather than perpetuating disparities, Portland Public Schools must address and overcome this inequity and institutional racism, providing all students with the support and opportunity to succeed. Portland Public Schools will significantly change its practices in order to achieve and maintain racial equity in education.

The Racial Equity Policy represents the progress of a district that has been telling what Superintendent Carole Smith called in her Guest Column in the Oregonian “the ‘brutual truth’ about factors that limit educational opportunities for our students, such as: inequity among our schools, classes that fail to meet the needs of all students and outdated ways of supporting better teaching.”  Smith acknowledged that the district opened itself up for criticism when it began collaboratively analyzing data and asking difficult questions about race.  However, she noted that the district gained something more important: “a better understanding of how to engage students at all grades and prepare them for a successful future.”

Congratulations to Portland Public Schools for telling the truth and to the Portland School Board for adopting a Racial Equity Policy that acknowledges and seeks to rectify that truth – not by scapegoating children of color, their families, and their communities but by accepting the responsibility to educate all of its students.  We hope Portland will serve as a role model for other districts in addressing institutional racism and inequity, and we look forward to seeing how Portland’s Racial Equity Policy unfolds.

Image source: Portland Public Schools

Africa in an Afternoon Hits Home

Africa in an Afternoon Hits Home

Reading Time: 3 minutes

I recently returned from my first trip beyond the borders of these United States. My son, who is 20, and I went to Spain with a couple of backpacks, a general idea of the cities we wanted to visit and no hotel or transportation reservations for the two weeks of our stay. During our time there knew we would visit Madrid, Barcelona, and Granada and the rest of our days were open for whatever adventures we might happen upon.

One morning we ventured south to Gibraltar, the British territory on the southern tip of Spain. Gibraltar, famed for the massive Rock of Gibraltar, which is really a small mountain in the midst of the flat waters where the Mediterranean Sea and Atlantic Ocean meet, is known as one of the Pillars of Hercules. Historically, the Pillars of Hercules mark the end of the known world and the entrance to the Straits of Gibraltar. With the Rock of Gibraltar as one Pillar, the other Pillar, is a mere 7 miles across the Straits, is in Africa. The exact location of the south Pillar is often disputed as there is not a physical monolith as distinct as the Rock of the northern Pillar.

Despite the fact that there is no monolith, the short distance across the Straits of Gibraltar to Morocco, Africa’s northernmost country, yields an irresistible and inviting view of its northern coast. So, we decided to go there. To Africa. For the afternoon. Because we could.

We hailed a cab and within an hour we were on a ferry, passports stamped, and were crossing the Straits for a leisurely afternoon in Africa. As the ferry crossed, a large foothill dominated the view–possibly the Southern Pillar? As we approached the coast, I could see on the side of the foothill very large Arabic lettering and wondered what it meant.

When I saw that sign the reality that we had just decided to go to Africa for the afternoon started settling in. I went from feeling excited to feeling sick. The closer we got, the more sick I felt. Why did I feel like this? Was it because in our hasty departure from Spain it had not occurred to me that I do not know a single word of Arabic, the language of our destination? Or was it that I had a one-way ferry ticket, only 40 euros in my pocket, and it was just occurring to me my credit cards were only authorized for use in Spain? For a second, it might have been some of that, but I knew between my son and I we had the problem-solving abilities and moxy to get us back to Spain.

That sick feeling persisted until I finally slept sometime the next morning (we did get back to Spain that night). I spent most of that afternoon in Africa, and many hours since, knowing that sick feeling was a result of suddenly realizing how cavalier I had been about getting to go to a place from which so many have been taken against their will.

Instead of spending that afternoon strolling the city and relaxing with some mint tea, the customary drink of Morocco, I spent it struggling in my thoughts with the global and historical context of my privilege and wishing I had been more thoughtful and intentional about that brief journey.

In the weeks that have since passed, the logistical details and mishaps of that day have become an entertaining anecdote as we share our stories of our trip with friends. More importantly, that brief journey has become part of my ongoing personal journey to understand my white privilege, both at home and beyond.

Reflections on Elementary School

Reflections on Elementary School

Reading Time: 5 minutes

The last day of the 2010-11 academic year for my kids was four days ago.  It was a milestone day for both of my kids. My son finished his two years in junior high and is preparing to head into high school.  My daughter finished 6th grade, capping off her—and our—elementary school experience.  She is preparing to transition to the junior high school that my son is departing.

As you can imagine, this has been a time of reflection and remembrance for our entire family.  Unlike me, both of my kids attended the same school in the same town for their entire elementary school experience.  It meant that school was a pretty important institution in both of their lives—and in mine.  It also meant that I got to be a part of a particular school community for nine straight years.  As we leave that elementary school for good, I thought I would share a few reflections about what mattered to us as a family over these past nine years in one elementary school.

Combined Classes: The elementary school originally was organized with all classes being combined every two years after kindergarten.  That meant my son had the same teacher in 1st and 2nd grade, another teacher for 3rd and 4th grade, and another teacher for 5th and 6th grade.  Each year, half his class would be new, as the upperclassmen moved on to their next teacher and a new crop of younger students filled in.  In 2005, the school decided not to combine 1st and 2nd grade anymore, so my daughter had a different 1st and 2nd grade teacher.  But after, she was in the combined classroom experience, too.

The chance for my kids to have teachers who knew them over a long(ish) period of time was valuable.  The chance for me and their dad to get to know the teachers over time was valuable.  By and large, the teachers really did get to know our kids—and us.  We saved a lot of time over the course of those nine years by not having to start over every single year explaining what mattered to us and what we most wanted to work on with our kids.

Not only did the combined classroom model allow for a deeper student-teacher relationship, it also allowed my kids to spend part of their time as the younger kids in a class and part of the time as the older kids.  With two children with summer birthdays, this was surprisingly nice.  They don’t suffer for being the youngest in their peer group, but it was a nice opportunity to be the older mentors at least part of the time.

Lest you cringe (like I did) at the thought of a kid being stuck with a teacher for two years when the relationship isn’t working out, I do know several students who moved out of a classroom between grades.  Admittedly, for some of the parents I know who did this, it was a tough decision to make; it was not common and the ethos was to stay in the assigned classrooms.  And it generally required strong parental involvement to make such a choice.  But, it was possible, which I thought was pretty important in each case I encountered.

Test data mattered, but SO much mattered more: Yes, we are in Iowa, where standardized testing has been going on for over 70 years.  Indeed, we are in Iowa City, birthplace of the Iowa Testing Program and home to ACT and Pearson.  In addition to the Iowa Tests of Basic Skills, our school district uses the District Reading Assessment, an interim assessment that gives teachers periodic snapshots of student proficiency.  And our teachers were quite adept at being able to use the data from the assessments to decide how to help each student progress.  As parents, we were given test score data in our parent-teacher conferences and we discussed with the teachers how they were interpreting the data.  I was able to see how data driven decision making made a positive difference in my children’s education.

I also, thankfully, was in a school that did not value test score data over and above other criteria that really mattered.  We had a strong principal and thoughtful teachers who did not ostracize us if our kids did not perform well on a test.  Admittedly, we were in a privileged position; the school was populated by some pretty privileged kids and was not in danger of being placed on a “watch” list or being bad-mouthed because of the composition and performance of our student body.  And it really did take leadership to make sure that test score data had an appropriate place in the educational process.

Which was great, because in the end, I cared so much more about how my kids felt about themselves and about school than I did about how they did on those tests.  That’s not say that I wasn’t concerned about their academic performance.  I just knew that if they learned in first or second or third grade that they weren’t “smart” or they weren’t valued or they were a problem—or that school was an unfriendly place or that they felt bad being there—then my children really would suffer throughout their school career.  I think we made it very clear to all the teachers, principals, and classified professionals what really mattered to us and why.  And, they agreed.  Almost to the individual teacher, they exhibited care and attention to my children as whole children.  Yes, there were a couple of exceptions, but to be in an overall school culture where academics are central but happiness and engagement matter was a good thing.

Race Matters: As I write this, I am reminded of my privileged position, as a white mother with two white children in a predominantly white school system.  It took me several years to realize that not all Iowa City schools were created equal and that not all schools had the kind of racial diversity that I had hoped for my kids to be a part of.  I know…, “Duh”!  We had picked an elementary school not based on test scores or student demographics, but because we found a house we loved and we believed it didn’t matter which elementary school our kids attended.  They all were great, we thought, and, given what we did know about the town’ demographics and the reputation of the school, we thought we were in a racially diverse school community.  We were wrong.

I realize now that I had a kind of disdain for the practice of picking houses based on the racial make-up and/or the test scores of the neighborhood schools—because too often that has been a way of racially segregating our schools.  And so I put on blinders.  Looking back, I wish I had looked at the school demographics.  It turned out we were on the boundary between two very different elementary schools.  I do not want to diminish my children’s feelings of school pride, but I really do wish we had looked for a home just a few blocks to the south so that my kids had attended a much more racially and economically diverse school.  I couldn’t see that then, for lots of complicated reasons.  But race has mattered a lot in my kids’ school experience.  Just because we were in a predominantly racially homogeneous school, doesn’t mean my kids are exempt from race.  Quite the opposite!  But it is far too easy for us to reflect on our experiences and to forget that being white is to live a racialized existence in the United States today.  Thankfully, my kids can reflect openly on their own race and the way race is a factor in our school and our neighborhood.  We just too often miss the opportunities to recognize what we are learning and how we are benefiting unfairly by our race.

I hope that by being reflective about my own anecdotal experiences and the experiences my children share with me, I can be somewhat conscious about the perspectives I bring to my work.  I hope to constantly work to recognize our perspectives, uncover our blind spots, and acknowledge our biases.  Not to deny them, but to better understand them and to build education policies that honor and acknowledge the realities of student and parent experiences and choices.

Thank you, President Obama

Thank you, President Obama

Reading Time: < 1 minute

This week, President Obama issued a thoughtful, compassionate, and powerful video message speaking directly to young people experiencing difficulty because of their sexual orientation, or simply because they are different.

As one of our staffmembers put it, “It’s a beautiful thing.”

More information:

Federal resources on anti-bullying

GLSEN’s allies, including link to the Google blog and Google empoyees’ “It Gets Better” video

Bills Designed to Stop Bullying and Harassment in Schools

Bills Designed to Stop Bullying and Harassment in Schools

Reading Time: 2 minutes

On August 5, 2010, the Safe Schools Improvement Act (SSIA) was introduced in the Senate by Bob Casey (D-PA). SSIA would amend the Safe and Drug-Free Schools and Communities Act—which is part of the No Child Left Behind (NCLB) Act—to include bullying and harassment based on a student’s actual or perceived race, color, national original, sex, disability, sexual orientation, gender identity or religion in its definition of violence. As such, it represents the first time protections would extend to persons on the basis of sexual orientation and gender identity. Districts would have to notify parents annually of their anti-bullying and harassment policies, as well as set up a grievance process for students and parents to report incidences. Additionally, states would have collect and report to the U.S. Department of Education data on incidences.

SSIA attempts to respond to staggering levels of bullying and harassment in schools. According to a 2005 report, 65% of the 3000 middle and high school students surveyed reported being bullied in school in the past year. According to a 2007 report, 84% of the 6,000 gay, lesbian, bi-sexual and transgendered students surveyed reported being harassed in school and 61% said they felt unsafe at school due to their sexual orientation. Both studies found anti-bullying policies like those required by SSIA significantly reduced bullying and harassment in schools.

The idea behind SSIA has been around for some time. The current iteration was introduced in the House by Representative Linda Sanchez (D-CA) in January 2009, but its introduction by Senator Bob Casey (D-PA) represents the first time it has made it to the Senate.  SSIA follows the introduction of the Student Nondiscrimination Act (SNDA), introduced in the House in January 2010 by Jared Polis (D-CO) and in the Senate by Al Franken (D-MN) in May 2010. SNDA is patterned after title IX and would prohibit discrimination (including harassment) on the basis of real or perceived sexual orientation or gender identity in any program or activity receiving federal funds.

Both SSIA and SNDA have broad support from civil rights and education organizations. It seems their only vocal opposition is from groups like Focus on the Family, which has launched a campaign against SSIA by claiming it promotes homosexuality and pro-gay curricula. Senator Casey has responded to Focus on the Family’s campaign against the legislation in a blog post, arguing that “by mischaracterizing the purpose of anti-bullying legislation, Focus on the Family is intentionally ignoring the prevalence of bullying in schools around the country.” And, we would contend, it is perpetuating the consequences of such bullying–from higher incidences of drop outs all the way to bullying- and harassment-related tragedies. It is about time we took action to make our schools safe places for all students. The proposed legislation represents a firm step in that direction.

Learn more about SSIA here.
Learn more about SNDA here.

This Labor Day I thank the unions for bringing me the weekend, including this long one

This Labor Day I thank the unions for bringing me the weekend, including this long one

Reading Time: 2 minutes

Labor Day has always been, for me, a symbol of one last chance to partake in summer’s delights—a barbeque with friends, a roadtrip before children’s school activities dominate the calendar, one last dip at the city park pool before it’s too cold to enjoy, a small town parade.

It’s easy for me to answer the questions of where to plunk my lawn chair along the parade route and whether or not to toss in a sweater for the weekend roadtrip; it is not so easy to answer another question that crossed my mind today: “Why do we celebrate Labor Day?”

Most of the accounts I found that answer the question, “Why do we celebrate Labor Day?” talk about the first Labor Day (September 5, 1882) and argue over who founded Labor Day (Peter J. McGuire or Matthew Maguire) and the reason the first Monday of September was chosen as the permanent date for the holiday rather than the alternative choice of May 1 (Haymarket Affair).

Those accounts don’t talk about labor unions or the benefits that have resulted from the collective action of unions. Since their inception in the1800s, labor unions exercised the tenets of democracy to leverage rights for workers such as the 8 hour work day, child labor laws, equality in pay, and protection for worker safety and health.

Many workers in this country, including myself, have never been and may never be union members but it’s important for me to know and appreciate how I benefit from the toils both of my fellow workers, past and present, and the labor unions that represent them.

So, this weekend, as I barbeque, head out on a roadtrip, swim, and clap along to the beat of the bass drum as the band marches by during the parade, I will know I have got the labor unions to thank, not only for my long holiday weekend but also for so many rights and protections I take for granted every day.

Act 250 Helping Rid Wisconsin of Offensive Native American Mascots and Logos

Act 250 Helping Rid Wisconsin of Offensive Native American Mascots and Logos

Reading Time: 2 minutes

Wisconsin’s new law–Act 250–allows persons to file a complaint against a school board for its “use of race-based nicknames, logos, mascots and team names.”  What is particularly exciting about the new law is that, during the resulting hearing before the State Superintendent of Public Instruction, the school board and not the complainant “has the burden of proving by clear and convincing evidence that the use of the nickname or team name in connection with the logo or mascot does not promote discrimination, pupil harassment, or stereotyping as defined by the state superintendent by rule.”

According to the Wisconsin Indian Education Association’s Indian Mascot and Logo Task Force, that burden is going to be pretty hard to meet.  The Task Force cites research by Dr. Stephanie Fryberg showing white students receive an artificial boost to their self-esteem and self-efficacy while American Indian students experience a decrease in both;  the harm is the same whether the images are intended to be “noble” or cartoonish.  Moreover, the effects on American Indian students are worse when the use is “approved.”  (The Task Force cites other studies as well, including a recent study published in the Journal of Applied Social Psychology titled “Effect of Exposure to an American Indian Mascot on the Tendency to Stereotype a Different Minority Group,” by Chu Kim-Preito, Sumie Okazaki, Lizabeth Goldstein and Blake Kirschner).

Despite overwhelming evidence of harm, the Task Force reports that, as of May 13, 2010, 35 schools in Wisconsin were still using Native American mascots or logos.  That number will certainly go down.  For example, Kewaunee School District–one of the first districts to be challenged–has agreed to change its logo.

The most recent challenge was filed by Rain Koepke regarding the Mukwonago High School mascot, and a hearing is scheduled for August 27.  In the local paper, a high school student said he, too, wanted to file a complaint and offered his own rebuttal to claims that such mascots and logos are benign and intended to honor American Indians.  The student chose to remain anonymous for fear he would be ridiculed for his Native American heritage, which is not apparent by his appearance.  The student wrote a four-page essay on the issue, an exerpt of which was published in the local paper.  Sadly, in an update in the same paper, MHS Principal Shawn McNulty was quoted as saying “We will present the facts and provide a vigorous defense in support of the Mukwonago School District and our Mukwonago High School logo.”

The new law provides a powerful legal tool to fight racial discrimination, and it opens up an avenue for continued dialogue about race.  In particular, it invites conversation about why it is that when people of color say they have been harmed, the response is often disbelief (it’s the  “show me your wound and I’ll tell you if it hurts” phenomenon).  The fact that a student feels he has to hide his Native American heritage–and the district continues to fight for its mascot–suggests there is much more going on at MHS than can be solved by doing away with the mascot.

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